No Regrets, Disability Be Damned
One of my life’s mantras is No Regrets. Sure, it’s
cliché, but I never wanted to look back on missed opportunities and wonder What
If. But when I was diagnosed with multiple sclerosis, that mantra collided with
an incurable disease and it made me pause. Maybe I should take a pass more
often for my health. Maybe I should live more conservatively. Maybe I should take
fewer risks. So in that first year, when the enormity of coping with MS mentally
was at its crescendo, I did. And I passed up a once-in-a-lifetime experience
that haunts me to this day.
Now I could point to the missed opportunity to
ride horses with Laura on a Mexican beach that year … when I was certain the
headline in the following day’s paper was going to read Founder of ActiveMSers
Dies in Freak Horse Accident. Or I could point to the missed opportunity that
year to try surfing for the first time (similarly, Founder of ActiveMSers
Perishes in Freak Surfing Accident). At the time, freak accidents seemed almost
a given if I strayed from the safety of curling into a ball feeling sorry for
myself. But no, these regrets pale to what happened in Las Vegas on November 1,
2006.
The location: SEMA, the invitation-only, over-the-top
aftermarket car show that the Fast and the Furious movie franchise was
essentially built around. The scene: the high-performance drifting track hazy
with tire smoke and an unfortunate engine fire. The situation: As
editor-in-chief of a Nissan magazine, I was being introduced to owners of
souped up sports cars. But one owner had his own personal tractor beam and fan
base: supermodel Tyson Beckford, at the time Ralph Lauren’s leading man.
I’ll admit my man crush was instantaneous. I
remember the moment—the clothes, the handshake, the frighteningly good looks,
piercing eyes, and epic jaw—as though it had happened yesterday. We talked
cars. We talked drifting. I admired his modified 350Z. Tyson then handed me a
small leather box (and I can say Tyson because by then we were basically on a
first-name basis, at least in my head). Inside, on a bed of felt, was a gold
access card. He had just invited me to his exclusive private party that he was
hosting that night. Me.
How could I possibly go to a party that started
well after my bedtime? How could I possibly go to such a party when I exuded
about as much coolness as a pair of used lime-green Crocs. How? But there was a
bigger problem, or so I thought: I had multiple sclerosis. I was disabled. I
should play it safe, get my eight hours of sleep, and floss to prevent tooth
decay.
So I never showed up.
Tyson Beckford. Photo by Jesse Gross. |
More than two thirds of those diagnosed with MS
are women, and I would hope right now that all of you are yelling at your
computer screen calling me an idiot. For that matter, the guys, too. You all
would be right. That party, I imagine, would have been epic, like the Hangover
without the drunk wedding, naked Chinese dude, and Mike Tyson. Check that, Mike
might have been there. And there might have been a tiger in the bathroom. The
point is, I’ll never know.
Comments
Man, you are right...sometimes we have to say "Smh" to MS & go for it.
Who knows, at the party Tyson could of had an accident & been unable to do a photo shoot the next day...Dave Bexfield steps in as a replacement to become the next Ralph Lauren model.
Stranger things have happened.
Great story!
Perfect timing, thanks for the arse-kicking.
I just got back from a trail run during which my left foot kept falling asleep. I tripped over it, went head first down a rocky slope & left half of my skin behind.
During the 4 mile hobble home, that insidious MS voice kept whining away at me that it was my own fault, and I shouldn't be doing 'normal people things' with my condition. Ir almost convinced me that I should be on the sofa in front of the Idiots' Lantern for the rest of my finite time on this planet.
I read this just in time. Thankies muchly, Dave!
And MS, you can STFU.
I was just thinking about Friday night this week...I am going to be so dead tired, but I desperately want to go to the Football game to see my nephew play in his Homecoming game AND I need to be awake to go to the airport about the time that game ends. How am I going to do both?!?! I was considering how to tell my nephew I can't go to his game. And then I was thinking how can I tell Mark he should take a taxi home from the airport... Oy! None of that is acceptable! What have I got going on Saturday? Nada! So, I'm going to live it up Friday night!
I know that my Friday isn't going to be anything like your missed party was, but the exhausted part of the night will be similar. You sure know how and when to give me a good swift kick in the pants!
We will go tonight. I'll probably be tired, but maybe I won't be. If I am tired, I'm not going to die. I'm not going to die if I'm tired tomorrow due to not getting enough sleep. Millions of people don't get enough sleep and they don't die either. Granted, their fatigue is not the same as the fatigue that we have, but it's there even if I do get enough sleep.
So am I gonna just let life pass me by? No. I've been doing that for six years. Not gonna fly anymore. I'm gonna live. I'm gonna do all of the things that I've been saying no to. Thanks for this article. It's such a confirmation and very timely!
Jason Hayes @ Decorm